Hereditary angioedema is a health disorders that affects many people across the world. Characterized by severe swelling in different parts of the body, this condition can become fatal especially when the swelling occurs in the air’s passageway in the throat. Only genetic counseling can is the only prevention option of people who have family medical history of this disease. When not prevented, hereditary angioedema can become severe during the late childhood or adolescent years of the patient.
Awareness about this condition, as well as its symptoms and treatments can greatly help those people who are affected by this health disorder. Fortunately, there are various resources for substantial information about hereditary angioedema which can greatly help affected persons. Here are some information and help resources for patients with hereditary angioedema:
National Institute of Health (Genetic and Rare Disease Information Center)
The National Institute of Health- Genetic and Rare Disease Information center provides comprehensive information about hereditary angioedema. It provides detailed info about the disease, its occurrence, available prevention, symptoms, treatment and others.
This website is dedicated to provide helpful information about genetic diseases like hereditary angioedema. It offers answers to basic questions about the disease’s commonality, severity, and others. It also provides links to other sites that offer accurate information about the disease.
US Hereditary Angioedema Association
The US Hereditary Angioedema Association (US- HAEA) is a non- profit organization that offers help to people with hereditary angioedema. It provides a support network for patients and families, as well as a wide range of services like physician referral and individualized patient support. It also conducts clinical research to find the ultimate cure for this disease.
National Organization for Rare Disorders (NORD)
This website also provides helpful information about hereditary angioedema, along with other rare diseases. Here you can find general details about the diseases. It also provides names and addresses of groups, organizations, and other institutions that may help people who are suffering from hereditary angioedema.
World Allergy Organization- Hereditary Angioedema (HAE) International Alliance
The WOA HAE International Alliance is a global resource for educational and research activities aimed towards the awareness of the disease. It highlights and encourages clinical and other forms of HAE researches to spread the word about the occurrence of this health problem. It also aims to develop and distribute consensus documents about HAE to provide access to accurate, relevant, and helpful scientific and clinical data about the disease.
Through these various resource centers and support organizations, people suffering from hereditary angioedema can have all the help that they need for their condition.